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Caregivers NEED and Can Enjoy Vacations

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Author Elder Rage www.ElderRage.com
Host Coping With Caregiving Radio Show
www.wsRadio.com/CopingWithCaregiving

WELCOME BACK ALL MY CAREGIVERS—Tell us your story!

I get so many emails every day from caregivers who are so stressed out, often saying they'd love to take a break and get away for a little vacation, but are just too afraid to leave their loved one and go. They always ask me if they will ever have a normal life again. I experienced that awful feeling while I was taking care of my parents and didn't take a vacation for over five years. I'll emphatically tell you this--I wouldn't do it again! I always email back and say, "Please listen to me and put yourself first! You don't want to get sick and shorten your own life simply becasue you were a good daughter to your elderly mother."

Caring for chronically ill loved ones is one of life's greatest challenges, and caregivers often feel guilty if they try to schedule time away. Also, fond memories of past vacations when their loved one was healthy can create a downward spiral with feelings of loss and sadness.

Realize you are not alone and that more than fifty million people, one in every five Americans, help loved ones who can no longer help themselves--but don't be like so many who neglects their own well-being and risk getting sick yourself.

Steps caregivers can take to reduce stress and enjoy a well-deserved vacation:

1. Take Care of You First: You can't be an effective caregiver if you are so stressed out that you get sick and have to cancel a vacation. As hard as it is to find the time and motivation, realize that it's imperative that you nurture yourself.

-Eat healthy: set limits on high fat and processed foods, caffeine, and too many sugar-laden treats that can increase fatigue.

-Exercise often: take a walk, stretch, lift weights, do isometrics

-Get proper sleep: take naps when necessary

-Get out and get a little daily sunlight

-Read your list of Gratitudes several times a day

-Meditate: practice deep breathing and visualize happy times

-Attend a support group regularly: solutions will present themselves

-Do things you enjoy: read, music, hobbies, crafts, movies, etc

-Use a hand sanitizer: viral and bacterial infections can be reduced

-Treat depression: see a therapist and consider taking an anti-depressant

-Get yearly physicals and appropriate tests: cholesterol, blood pressure, diabetes, mammogram, prostate, colonoscopy, etc

2. Plan Ahead, Organize, Pace Yourself: Give yourself plenty of time to plan a vacation, but be careful not to take on more than you can manage. Make lists of things that must be done before the trip, and secondary lists of things you would like to accomplish if possible. Be sure to set strict limits with yourself and others of what you can and cannot do.

3. Ask For Help: Don't wait for others to ask what they can do to help. Instead, ask everyone to pick the tasks from your list that they feel comfortable with. In addition to the list of caregiving and household chores, include vacation-planning tasks such as:

-Take the car in for service, cleaning, tire rotation

-Get maps/brochures of vacation destinations

-Make itineraries, check availabilities

-Get reservations/tickets

-Stock up on groceries/cook meals ahead for the freezer

-Refill medications, stock up on supplies

-Call agencies and interview caregivers and facilities for respite care

-Make a schedule with details of all duties for the caregiver(s)

-Organize back-up help

-Distribute an emergency plan with contact information to everyone

4. Be Positive: Having a vacation to look forward to will help you feel less deprived of a normal life. Be aware that having fun, laughing, and focusing on pleasurable things, rather than ill health, will help to keep you in emotional balance. The break will recharge your batteries.

5. Use Adult Day Care: Enrolling elderly loved ones in Adult Day Care is often the very best thing for them. They'll be busy enjoying activities like: singing, crafts, cooking, gardening and bingo with professionals who know how to motivate and manage them, helping them focus less on your absence.

6. Seek Professional Help to Cope: Numerous resources are available to help caregivers. Consider hiring a Geriatric Care Manager, who can personally guide you through the complicated maze of eldercare. Also, many faith-based organizations offer support to family caregivers.

-Your local Area Agency on Aging or Department of Aging

-Eldercare Locator (800) 677-1116

-Alzheimer's Association (800) 272-3900

-National Adult Day Services Association (212) 494-0755

7. Shift Perspective: Resolve to stay in the present, savor the good moments and guard against focusing on the decline of your loved one. Imagine yourself in their position, needing a caregiver to do things for you all of the time. Now ask yourself what you'd want for your loved ones who'd be taking care of you? Would you want them to be continually sad, depressed, burdened, isolated, and not living up to their potential, following their dreams or even taking a little vacation--because of you?

Of course not.

Realize that your happiness is what your loved one wants most for you (even if it doesn't seem like it), and that you do them honor by living a balanced and fulfilled life, which includes enjoying vacations.

Jacqueline Marcell

Author Elder Rage www.ElderRage.com
Host Coping With Caregiving Radio Show www.wsRadio.com/CopingWithCaregiving

Tell us your story!

Jacqueline Marcell's picture

Hey Carol, great idea! I am delighted your M-I-L is still able to travel so you can can too. Like my father always used to say, "Don't wait for the (blank blank) Golden Years!" In case she gets to the point that she can't travel, I encourage you to get prepared now and call local Assisted Livings and see who offers the best respite care, so you can still take your much-needed vacations and relax--knowing she is cared for.

Carol Wolf's picture

I'm new to this site ... glad to have found it ...
Whenever I go on vacation, I also send my m-i-l (diagnosed with dementia) on a vacation. My husband (her son) died last June, and I had to go somewhere ... that is when I first started thinking about where Mom would go if I left. Her other son lives in Columbus, OH, so, I found a non-stop flight from San Francisco to Cincinnati and put her on it. Between him and my m-i-l's sister (also in Ohio), both of them watched her while I was visiting relatives. The same thing happened in November, and again in April.
As long as Mom can travel by herself, and I'm assured that the wheelchairs will be there for her (they are), then I can travel with ease.
I am doing okay, and I have a wonderful family and friend circle that I can depend on. Our two daughters and my family tell me I am recovering wonderfully, so that's all I can go on. For me, I just don't know what I'd do without my large family and neighbors to lean on.
Thanks for letting me vent.

Mel Greenlee's picture

A wonderful service to use when you or your loved one is receiving care is CaringBridge (www.caringbridge.org). It’s a simple way to stay connected to your friends and family. Within just a few minutes you can have a unique and personal CaringBridge site that will ease the burden of any caregiver and provide you with meaningful support and communication that you need.

Jacqueline Marcell's picture

Hey Joseph, ughhh, I am so angry about what you are being put through and so sorry it is still so difficult for you. I wanted you to share your story with everyone because I get so many emails everyday from people fighting to get care for loved ones from a messed up healthcare system (as I did for over a year) and I know your story and eventual success is going to help others.

Make sure you are on the record with APS (Adult Protective Services) and keep them updated on everything, as a loooong paper-trail will help. Our civil rights are so strong, it is very hard to do anything against a person’s will when they appear competent. Amazing how Jekyll and Hyde can pull it together when they need to!

Get a mini tape recorder and secretly record some of your father's illogical and irrational rages--that will help the professionals know how bad it really is. I don’t know, I am questioning the “Manic Psychotic” diagnosis. Sounds like some form of dementia to me, just like my father, who they labeled with everything else first. Please ask for a thorough evaluation of dementia.

Hang in there and most importantly take very good care of YOU so that you don't get sick yourself!!
Please keep us updated--I know you are going to solve this.

Joseph D. Marchione's picture

So today was D-Day. He was released from the facility because the doctors deemed him "not harmful to himself or others" and because he was refusing tests, treatment or medication. There was nothing they could do short of a court order, and since it was Dr. Jekyll (again to borrow from Jacqueline)that was showing his face, they thought they'd have a hard time convincing a judge he needed help.

Gotta love the ACLU for making sure that delusional mental patieints and judges can decide if they need care, rather than medical professionals!

At our house convenes the elder care lawyer, who is representing the family as a whole, my father, his attorney, who I went in disliking immediately, and my mother. My father starts in almost immediately on my mother, much to the dismay of his lawyer. He was supposedly leaving to stay with my uncle, but he still wanted control over all the assets, and he wanted to retain his keys to the house. Even his lawyer agreed that this was ridiculous, and he will now have to open a new checking account. We will make sure he has money to live on. I wish my uncle luck. He doesn't know what he's getting himself into.

My father, when packing up things, noticed that something was "missing" and immediately went and blamed my mother. More than likely he misplaced them, but it was the same refrain "You're a liar! You took them!" His lawyer even had to step between him and my mother.

Finally after hours, they all finally left. Or so we thought. My father returned to the house after the lawyers were gone and immediately tried to get my brother arrested for "assualt" (my brother was taking care of my other brother, and my father pushed his way to the outside of my brother's forearm. He calls this a "choke hold." It's a do-it-yourselfer apparently, since HE pushed himself into it! Oh.. this was weeks ago, btw. We had to call both attorneys, and the facility among others.

His attorney, who I started off hating for taking advantage of this sick man, rather than trying to get him help had a bit of a chat. He said the best thing to do is to separate the combatants and let things cool down, THEN he'd try to get him to see someone. If this guy manages to pull that off after all of this, then he's a much better man than I gave him credit for. After all, I don't want my father out of the house--I want him well and happy, and right now he's neither.

Joseph D. Marchione's picture

A little late, but I keep my promises. And since I promised to post how things were going with my dad, here it is. I am editing though, to make it a current narrative, rather than reposting what I wrote a couple of months ago.

I had set up an appointment with the head of geriatric medicine the hospital (I am omitting names here) Actually, I set up TWO appointments, one for my mother and one for my father, so he wouldn't feel I was ganging up on him. He did anyway, but that's another story. Anyway, having the head of geriatric medicine look at my mother wouldn't hurt her at her age (she's 82), and anything to get my father to go.

At first he agreed to it, then he tried to get out of it, saying that he's fine and doesn't need to go. I basically told him, "tough, you're going." Today he tried to get out of it by saying he'd drive himself. I'm pretty sure he never would have arrived, so I didn't let him get away with that tactic either. He was surprisingly malleable though. I would have expected more of a fight, but maybe on some level, he wanted me to convince him.

He was difficult from the get-go. He was supposed to fill out the med history forms in advance and didn't. Actually, he refused to do it before he got there. I tried. He forgot his insurance cards. But we got there. And he's argumentative with me in the office. He'd deflect questions off to me, then get mad at my answers, so I left the exam room and basically let him hang himself.

The upshot: The doctor diagnosed him with manic psychosis. Or as she put it afterwards "He's crazy." The good news is she said it was treatable. She set us up with a Psychiatrist which we had to get him to the next day under the pretense is that he was being set up with a marriage counseling appointment with this psychiatric office. He refused to go with my mother so we set up "individual appointments." Actually we didn't. I just needed to get him there. The office squeezed him in the next day because I didn't want it to wait too long and have to go through the song and dance again. I couldn't risk him changing his mind. And because sitting on this for that long would have been very, very hard.

The appointment went o.k. at first. He balked at the place being called the "Geriatric Program" because at 79, he didn't consider himself "geriatric." To him that means decrepit and in a wheel chair. We me with the doctor in a small, but private office, where he asked him a battery of what I'm sure were a standard psychiatric exam. One of the questions, which he kept repeating, was to remember three words. "Daisy, seven, happiness." He'd ask later what the words were. My father would consistantly remember only two. When asked later he'd get frustrated, say it "wasn't important" or just plain get angry. By the end of the exam, this doctor, too, diagnosed him as manic psychotic.

Unfortunately, this doctor had the bedside manner of a lead balloon. He basically told my father, on the first visit, and without having established a rapport, that he was delusional and needed medication. THAT was brilliant. Leave it up to the delusional psychotic to decide what's best! Well, my father got angry, upset, and walked. out.

Now instead of him getting help, I had an angry senior citizen on my hands who was even MORE resistant to getting help.

This was a couple of months ago. Fast forward to the present.

A couple of weeks back, my father was getting really bad with my mother. He would be calling her "whore" and other things I won't type here. He had done this in the past as well and things went into a full-fledged screaming match. My brother called the police (this hadn't been the first time), but this time, when they came to the house, and listened to his rant on my mother, and saw this four foot ten, nearly 83 year old "whore".... well they finally took him in against his will for evaluation.

Finally! Though I didn't like the thought of my father in a mental facility, I was glad that he would finally get the help he needs. I spoke to his doctor, and I spoke again to the head of geriatric medicine, who assured me that he was "where he needed to be."

The problems arose when he refused treatment, and even refused tests. They would not do anything against his will, and his will was firmly against getting help. Of course HE was fine and the REST of us need help! We now had to start proceedings to try to get him help against his will. He went and retained a vulture... I mean lawyer... who pretty much didn't care what the medical professionals had to say and put up roadblocks at every turn. He took advantage of the fact that the first doctor that saw him was away on vacation, and that the doctor at the facility was now at another location and he had a new doctor who only saw the "reasonable" Dad, and not Mr. Hyde (to borrow from Jaqueline), and he is now getting released tomorrow.

It gets worse. He will not come home, afraid that my mother and brother will "do it to him again." and is instead going to my uncle's three room apartment to stay with my uncle and my late stage Alzheimer aun't until he can find a place of his own. He has again escaped getting help, and my uncle helped him do it. He couldn't get out until he had a place to stay, and my uncle continues to make excuses for him. I have to continually remind him that he gets his information regarding the rest of us from a guy who is psychotic and he cannot always take him at his word. My father may believe what's coming out of his mouth, but it isn't based in reality.

I tried to talk to his new doctor, but he always is conveniently "on the floor" and I never get a call back. The socail worker, who I DID manage to get on the phone only had two words to say to me--"HIPA Law" (or however that's spelled) them from telling me anything, even though he is my father! Anything from this point forward will require a court order. So basically the medical professionals are trumped and hamstrung by judges and lawyers who may know what is "legal" but not what is "right".

So proceeding will start for division of assets and all the lovely stuff that comes with a break-up. I will continue to seek a means to get him help but the way things now are, it will be very very hard. Once he leaves my uncle's I probably won't know where his is if he has his way. When I went to visit him at the facility tonight, to try to convince him to stay home, he accused me of going there to "get information" and basically attacked my character and disowned me.

I hate lawyers.

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